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Pagoclone experiences continue to trickle on to the web…

Ran across a post by the Helm’s Family Blog regarding someone that is in the Phase IIb Pagoclone trial.  The poster recognizes that it’s a double-blind study, and cites that his severity is mild enough such that an effect may or may not reveal itself.  (Which is exactly what we want–we want all parties to be skeptical of the treatment effect, so that if/when it happens, it’s real and not a placebo; this is a massive problem in pretty much all stuttering treatment.)  I hope he posts updates w/ future experiences…

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  1. May 28th, 2009 at 19:36 | #1

    There’s a guy Imet at NSA last year who is doing the study. He posts an update about every 2 weeks or so on stutteringchat. He says he has seen some inconsistency w/ his stuttering, will soon find out if’s been on placebo or the real deal. Its kind of fun to read his posts. I will see him at NSA, will be sure to ask him about it!

    I was accepted into the study, but declined, because they required office visits, closest sie about 3 hours away, and not open Saturdays. How can ordinary working people who stutter do that?

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  2. Greg @ Stuttering.me
    May 29th, 2009 at 08:44 | #2

    Yeah–I remember you telling me that. Bummer! There’s a trial up in Memphis, which is about an hour away. But I didn’t even apply; it’s too far, not enough benefit for me, and I may or may not have been the best candidate due to my relations w/ Indevus.

    Still really interesting to see the data!

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